Cystic Fibrosis Foundation

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by Jennifer Tomazic

MILWAUKEE -- The Cystic Fibrosis Foundation's Climb for a Cure is coming up on Thursday, November 15.

The event helps people like Annie Butler. The 12-year-old has been living with CF since shortly after she was born, but her parents say advancements that the CF Foundation has helped fund have made her life much easier in the last few years.

As it is, Annie has to do treatments twice a day, 40 minutes a piece, to control the disease that affects the lungs and digestive system. She also takes a multitude of vitamins that help her stay healthy. Because kids with CF have a greater chance of getting an infection when they get things like the common cold, so staying on top of the disease is key.

"She tries to balance her treatment with hanging out with friends and getting homework done, and playing with our dog, Jo Jo," said Annie's mom, Helen.

The CF Foundation is a key component to Annie thriving, the Butler's say, and her dad, Kipp has been giving back to the organization by getting the word out about cystic fibrosis and helping to fundraise for the non-profit.

"We're so passionate about the CF Foundation and everything they've done for our family," said Kipp.

One of the things is make the treatments easier for Annie. Kipp with the help of technology, CF treatments are at a whole new level.

"There was a medicine in the past where she would have to take it via a nebulizer, and that can take up to 15/20 minutes," said Helen. "Now that medicine she can take with an inhaler which is 10-15 seconds."

The advancements are a direct correlation to the money that Julie Brzostowicz, with the local CF Foundation chapter, says is donated.

"The Cystic Fibrosis Foundation raises money for cystic fibrosis so nearly 90 cents of every dollar goes to research, care, and education programs," said Julie.

You have an opportunity to help by climbing 47 floors, 94 flights, and 1,034 steps of the US Bank building in downtown Milwaukee on Thursday, November 15 from 5:30 - 9:30 p.m.

The money raised will help the CF Foundation and families like the Butlers.

"Without them, all the meds that I take now, that make it seem like I don't have it, wouldn't be there, so I might be more sick," said Annie.

"Cystic fibrosis has helped us understand that every moment is precious and every day is precious with each other and with our kids," said Helen.

For more information on the Cystic Fibrosis Foundation log onto http://www.cff.org/Chapters/wisconsin/

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