Hope for Debbie & Ashley


by Cindy McManus

Event Details

Date(s) & Time(s)::

Daily at 12:00 AM until 12:00 AM from June 5, 2013 until September 5, 2013

Location: Fundraising Website: http://www.gofundme.com/326snc

Email: frank.rocco@att.net

Link: http://www.gofundme.com/326snc

Event Description

Please consider helping our family.

Debbie Rocco & Ashley Metz are mother & daughter suffering from a genetic disorder called Arnold Chiari Malformation.

Never heard of it? Most doctors haven't either. This makes receiving the proper care very difficult. In addition, Debbie and Ashley both have a connective tissue disorder called Ehlers-Danlos Syndrome. These conditions leave them in persistent severe pain, along with debilitating headaches, problems with balance, vision, hearing, memory loss, loose joints, digestive problems, & malfunctions of their autonomic nervous system.

Debbie suffered for 7 years before she finally found a doctor in 2011 who diagnosed her with Arnold Chiari Malformation. In addition to these severe medical issues, she was diagnosed Fibromyalgia, Myofascial Pain Syndrome, Dysautonomia, & Gastroparesis.
Our daughter Ashley, now 16, started to have similar symptoms and was also diagnosed with the same disorders. During the 2012 - 2013 school year, Ashley has not been able to complete an entire week of school due to the pain and headaches her conditions present. Ashley has maintained a 4.0 grade average but it has slipped this year due to missing school and her medical issues. Going to school every day is just not a reality now so Ashley is considering taking online courses next year.

Please consider helping our family with the mounting costs of medical treatments, medications, and travel to specialists that are, unfortunately, not in WI.

GO TO OUR WEBSITE AT: http://www.gofundme.com/326snc.
You will also find more detailed information about Debbie and Ashley and these rare medical issues
Please give what you can, every little bit helps. My family & I humbly thank you.
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